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Photos, videos and stories from instagram posts tagged with #birminghamchildrenshospital

Images, videos and stories tagged with #birminghamchildrenshospital

#therockinr have been busy delivering a mobile gaming unit to #Birmingham Childrens Hospital ward 15 😁 this will make such a difference to the children staying there, bringing well needed #fun and #distractions to treatments and illness 👍 Thankyou to @peoplespostcodelottery…
#therockinr have been busy delivering a mobile gaming unit to #Birmingham Children's Hospital ward 15 😁 this will make such a difference to the children staying there, bringing well needed #fun and #distractions to treatments and illness 👍 Thankyou to @peoplespostcodelottery and everyone who supports our charity, without your help we wouldn't be able to do any of this so give yourselves a pat on the back for any help you have given us big or small 👏 #gamingdoesgood #gaming #gamingforkids #gamers #Xboxone #birminghamchildrenshospital #peoplespostcodelottery #postcodelottery
@benmudge_  still no #bemore t shirt so here is the boys first boxing outfit. He will smash his target raising money for the cf nurses at #birminghamchildrenshospital #bch #cffighter #birmingham #battle #cysticfibrosis #cfwarrior #priorypark
Absolutely love loved completing this order! Poppy is such a brave and inspirational young lady who has been receiving treatment for a Brain Tumour since she was 14months old. She has now just completed her GCSE’s and started college and 😊 Next weekend Poppy…
Absolutely love loved completing this order! Poppy is such a brave and inspirational young lady who has been receiving treatment for a Brain Tumour since she was 14months old. She has now just completed her GCSE’s and started college and 😊 Next weekend Poppy herself and a team of family and friends will be taking part in Equinox24. They will be running for 24 hours to help raise money for Birmingham’s children’s hospital. Please checkout the link for the teams just giving page, such a great cause ❤️ https://www.justgiving.com/fundraising/pfe2019?utm_campaign=pfp-share&utm_content=PFE2019&utm_medium=fundraisingpage&utm_source=Facebook&utm_term=Rxn2yP7Ay
A big thank you to everyone that came along and took part in our Charity Funday yesterday! Special mention and well done to all of our family cardio tennis participants who smashed their tennis session 🎾 👊 . There is still time to donate to our nominated…
Leukemia at 5 years old. Absolutely baloney. If I could take the pain, trade places, give whatever I would. To suffer at his age as so many others sadly do is just inhumane and unjust. Not only the sufferers themselves, but also the parents and families.…
Leukemia at 5 years old. Absolutely baloney. If I could take the pain, trade places, give whatever I would. To suffer at his age as so many others sadly do is just inhumane and unjust. Not only the sufferers themselves, but also the parents and families. I can't remember what it was like when I was 5 years old. I hope it will be but a memory for him when he's older too. #leukemia #cancer #unjustified #birminghamchildrenshospital
Ill be completely honest, I dont really do social media / am totally rubbish at it. As some of you way be aware through whatever avenue my nephew Oscar was diagnosed with Lymphoblastic Leukaemia on boxing day earlier in the year. All chemotherapy has been…
I'll be completely honest, I don't really do social media / am totally rubbish at it. As some of you way be aware through whatever avenue my nephew Oscar was diagnosed with Lymphoblastic Leukaemia on boxing day earlier in the year. All chemotherapy has been unsuccessful. His bone marrow transplant was unsuccessful. All NHS measures have been exhausted. He's been through the ringer time and time again. He's strong, but the cancer will not release its strangle hold on him. The only option is an experimental procedure in Singapore. It's either that or give up. We refuse too conceed. In order to go ahead we need to raise £500,000 in 2 months if there is to be any chance for him. All money raised will go towards funding the treatment. If for whatever reason the treatment does not go ahead, all the money goes to charity. I've been pretty quiet on the matter socially because to be honest I get up, I go to work and I endure. Apart from help and support my family as and when I can, that's all I can do. Publicising Oscar's situation on social media just makes it all too real at times for me when it's easier to just switch off and pretend like it's not happening mon-fri. However, I can't anymore because the situation is dire and we are desperate. Please help us to spread the word and help us raise the money needed to potentially save Oscar's life any way you can! A lot off you, especially my old Newent friends have helped massively already, and I'm sorry to ask yet again. We simply have no choice. https://uk.virginmoneygiving.com/fundraiser-display/showROFundraiserPage?userUrl=HandinHandforOscar&pageUrl=1&isTeam=true Thank you! Peace✌️and love ❤️ to you all. . . #handsinforoscar #leukemia #cancer #desperate #help #birminghamchildrenshospital #treatment #charity
https://org.usbornebooksathome.co.uk/URL_ELLABELLA/catalogue/catalogue.aspx. Welcome to my virtual party if you place an order through this link I will be able to earn free books for Birmingham childrens hospital ❤️ #lovebooks #usbornebooks #birminghamchildrenshospital
https://org.usbornebooksathome.co.uk/URL_ELLABELLA/catalogue/catalogue.aspx. Welcome to my virtual party if you place an order through this link I will be able to earn free books for Birmingham children's hospital ❤️ #lovebooks #usbornebooks #birminghamchildrenshospital
Well done KY great deed for charity
Done your bro proud , thanks to those that donated 
#birminghamchildrenshospital
#crohnsawareness #crohnsdisease
@aahevents #sandmantriathlon 2019. 11-weeks ago, these gallant souls decided to do the notorious Sandman Triathlon with zero tri experience and no front-crawl (2 of the 3 didn’t even have a bike!) all in aid of raising money for the #birminghamchildrenshospital…
@aahevents #sandmantriathlon 2019. 11-weeks ago, these gallant souls decided to do the notorious Sandman Triathlon with zero tri experience and no front-crawl (2 of the 3 didn’t even have a bike!) all in aid of raising money for the #birminghamchildrenshospital Today, after all their training and hard work, they devoured it. What an outstanding performance/achievement. 👏🏼👏🏼👏🏼 If you’re as in-awe as I am, please make a donation using the following link: https://www.justgiving.com/fundraising/paul-hadley3?utm_campaign=pfp-share&utm_content=Paul-Hadley3&utm_medium=fundraisingpage&utm_source=Facebook
September: 5km Muddy dog obstacle course 🐕 I ran 5km with my best floofy friend Cooper (and my Mum) today. It was soooo hard running with horrible soggy wet muddy feet after the 1st mud bath obstacle 🛁👟🏃‍♂️ #muddydog #muddydogchallenge #muddydogmanchester…
Created this jumper design in the hope to try and raise some money for Hand In Hand for Oscar. A little boy who has been told that the NHS can no longer help him with his leukaemia however private treatment for £500,000 could save him! Imagine being told…
Created this jumper design in the hope to try and raise some money for Hand In Hand for Oscar. A little boy who has been told that the NHS can no longer help him with his leukaemia however private treatment for £500,000 could save him! Imagine being told that as a parent!! Please help us help this family ~ every jumper sold means a percentage for Oscars fund. If 500 jumpers are sold that’s nearly £2500! Get sharing and buying! Adults and kids jumpers available! https://www.bonfire.com/hand-in-hand-for-oscar/ Please share as much as possible! #leukemia #childhoodcancerawareness #handinhandforoscar #birminghamchildrenshospital #raisingmoney #mommytogirls #instamom #instagrammom #parenting #justrainbows
Morning all Usborne is such an amazing company. When you place an order you earn a percentage of that sale to spend on books so you get them for free So I would like you all to have a look at my website to start with https://org.usbornebooksathome.co.uk/URL_ELLABELLA/…
Morning all Usborne is such an amazing company. When you place an order you earn a percentage of that sale to spend on books so you get them for free So I would like you all to have a look at my website to start with https://org.usbornebooksathome.co.uk/URL_ELLABELLA/ My plan is to place an order in the next week and the percentage earned for the free books will be spent on books for Birmingham children's hospital ❤️ the bigger the order the more books we get If you have any questions or have an order please message me on here or mobile Thanks guys #birminghamchildrenshospital #lovebooks #smallbuisness
Were delighted to reveal that were working with Felicity Dahl and Sir Quentin Blake to bring the magic of #RoaldDahl to our hospital. Together were planning to create a series of beautiful stained-glass windows in the entrance to our Waterfall House building.…
We're delighted to reveal that we're working with Felicity Dahl and Sir Quentin Blake to bring the magic of #RoaldDahl to our hospital. Together we're planning to create a series of beautiful stained-glass windows in the entrance to our Waterfall House building. Sir Quentin has generously donated his original illustrations to the hospital and on Thursday night we were joined by the wonderful Felicity Dahl and her good friend, Joanna Lumley who, together with our very own CEO Sarah-Jane Marsh, unveiled the original artwork. Please visit our website to read more about this project or to donate and help make these gorgeous windows a reality. Link in Bio. 🎈 🎈 🎈 #roalddahlday #stainedglass #childrensbooks #imagination #sirquentinblake #felicitydahl #joannalumley #fundraiser #charity #birminghamchildrenshospital #birmingham
One year ago today......our little man became the bravest boy we know . Not only did he have 6 hour cranio surgery but the day after was up and about on only paracetamol and ibuprofen AND did it all with a smile AND very few tears ! We are so proud of the…
One year ago today......our little man became the bravest boy we know . Not only did he have 6 hour cranio surgery but the day after was up and about on only paracetamol and ibuprofen AND did it all with a smile AND very few tears ! We are so proud of the little boy he is growing in to and the best big brother ever. So....a note to everyone, including ourselves : when you’re feeling a bit rubbish or sorry for yourself - have your moment and then move on. So many of little people fighting big battles we have met along the way have taught us so much and amazed us how they ‘just get on with it’ . A good though for Friday 13th 😊 #craniofacial #choosekind #craniowarrior #craniosynostosis #nhs #birminghamchildrenshospital #braveboy #myhero #bigbrother #begratefuleveryday #positivity #apertsyndrome #teamapert #teamzebedee #blessed #bestfriends #friendshipgoals @fuzzybear83_
Love this sign put up by @thehappynewspaper at #birminghamchildrenshospital. . For many children and adults cuddles make us feel better in so many ways, feeling loved, grounding, being connected, feeling cared for. So why not find yourself a cuddle with your…
Love this sign put up by @thehappynewspaper at #birminghamchildrenshospital. . For many children and adults cuddles make us feel better in so many ways, feeling loved, grounding, being connected, feeling cared for. So why not find yourself a cuddle with your loved one, pet, or cuddly toy this evening? 🤗
What an amazing way to round of my second week of working for Birmingham Women’s & Children’s Hospital Charity 🤩 Getting to be in the same room as the inspirational Felicity Dahl, and the iconic Joanna Lumley 😍😍😍 You couldn’t not be inspired by this incredible…
What an amazing way to round of my second week of working for Birmingham Women’s & Children’s Hospital Charity 🤩 Getting to be in the same room as the inspirational Felicity Dahl, and the iconic Joanna Lumley 😍😍😍 You couldn’t not be inspired by this incredible event - all in aid of raising money for Birmingham Children’s Hospital 👏🏼 👩‍⚕️ 🏥 #events #eventlogistics #birminghamchildrenshospital #birminghamchildrenshospitalcharity #bwchc #bch #roalddahl #roalddahlday #pureimagination #felicitydahl #joannalumley #quentinblake #iconic #inspirationalwomen #art #artsinhospital #whatanight #fundraising #newjob #newteam #tgif #happyfriday #friyay
Birmingham Children’s Hospital Charity has teamed up with Sir Quentin Blake, the world-famous children’s illustrator, and Felicity Dahl to bring the magic of Roald Dahl’s most iconic characters permanently to the hospital for patients, visitors and staff…
Birmingham Children’s Hospital Charity has teamed up with Sir Quentin Blake, the world-famous children’s illustrator, and Felicity Dahl to bring the magic of Roald Dahl’s most iconic characters permanently to the hospital for patients, visitors and staff to enjoy 💜 - - - - - - #BirminghamLive #BirminghamMail #BigOnBrum #BirminghamCityCentre #birmingham #birminghamuk #birminghamlife #birminghamchildrenshospitalcharity #birminghamchildrenshospital #birminghamchildrenshospitalcharity #roalddahl #roalddahlday #roalddahlquote #roalddahlbooks
Yesterday we had the honour to be invited to this razztwizzler of en event by @bham_childrens - Window Into The Imagination. The idea by Mrs Felicity Dahl is to have stained glass windows of @roald_dahl characters as drawn by @quentinblake to be installed…
Yesterday we had the honour to be invited to this razztwizzler of en event by @bham_childrens - Window Into The Imagination. The idea by Mrs Felicity Dahl is to have stained glass windows of @roald_dahl characters as drawn by @quentinblake to be installed at Birmingham Childrens Hospital. A fun evening with great performances from @sotebirmingham choir, and great speeches. If you wish to support this initiative go to bch.org.uk/roald-Dahl-window 🙏🏽 #nspauk #RoaldDahl #BirminghamChildrensHospital @joannalumleytv
4 months 8 days. Sponsor us and help us smash our target. Every penny raised goes to Birmingham children’s hospital. #kilimanjaro #2020 #hikking #roofofafrica #birminghamchildrenshospital #justgiving  https://www.justgiving.com/fundraising/kye-james
I want to start off by thanking all that follow Rileys Facebook page. Today marks a year since I (Rileys mum) in one of my darkest hours set up Heart Warrior Riley, for friends and family to keep them all updated with Rileys progress. I never imagined…
I want to start off by thanking all that follow Riley's Facebook page. Today marks a year since I (Riley's mum) in one of my darkest hours set up Heart Warrior Riley, for friends and family to keep them all updated with Riley's progress. I never imagined we would reach so many people. We may not have replied to your heartwarming messages, but believe me we read every single one. You are all incredible people that continuously prayed and wrote words of encouragement for our precious baby boy. So from the bottom of my heart, thank you. We have never shyed away from the importance of sharing Riley's story. It is not just the telling or writing it down, but knowing that when his story is read by others, we hope that by sharing in a public way, someone else might be inspired or helped by his story. For those of you who may still be struggling to overcome challenges or difficult times, we just want to pass on how important it is never to give up hope. Riley truly is strong and determined to survive, every beat of his heart is a miracle. The painful truth is that we do not know what the future holds for Riley, but what we do know is that we will never take his life for granted, it really is a blessing to have him in our lives. Here's to making more unforgettable memories, with our Smiley Riley who has touched so many lives and continuing to share the story about a little boy that never gave up no matter what being born with a broken heart sent his way or continues to send his way ❤ #heartdefects #cardiacbaby #transpositionofthegreatarteries #chdbaby #ecmosurvivor #heartfailure #openheartsurgery #pulmonarystenosis #aorticstenosis #zipperclubmember #heartwarriorriley #strokesurvivor #fightforeveryheartbeat #chdawareness #birminghamchildrenshospital #chdfamily #conqueringchd #chdaware #thisiswhyweadvocate #tinysuperheros #nicu #heartbeat #congenitalheartdisease #congenitalheartdefect #notjustastatistic #1in100 #hearthero
Get ready for this years BIG GIG! Tickets available in store just ask a staff member. Youll be a fool to miss this one 😱 #charity #charitygig #birminghamchildrenshospital #livemusic #5thoctober #bands #fun
6 years ago today I got the devastating news that my amazingly strong brave and beautiful daughter was terminally ill ... my heart was broken 💔#mumsanddaughters#togetherforshortlives#sister#brothers#bravechildren#birminghamchildrenshospital#antonynolan#childhoodcancer#leukaemia#familyisimportant
(Sorry if youre squeamish or are offended by this photo!) Feeling very grateful today! Today is 28 years since I had life saving open heart surgery at Birmingham Childrens Hospital when I was 5 months old. This photo was taken of me a few days after my…
(Sorry if you're squeamish or are offended by this photo!) Feeling very grateful today! Today is 28 years since I had life saving open heart surgery at Birmingham Children's Hospital when I was 5 months old. This photo was taken of me a few days after my surgery (obvs - cant imagine I was that comfy sitting up after having my ribs and insides all taken apart!). So thankful that the incredible doctors and nurses fixed my poorly little heart and gave me the care I needed. Thankful they looked after my worried family too. Grateful that they have since kept an eye on me and put things into place when needed. Today I was able to ring NHS111 and was given an emergency appointment (un-heart related) and I was able to get the antibiotics I needed within hours. The NHS is absolutely utterly amazing! I have alot to be thankful for. #nhs #thankyou #birminghamchildrenshospital
THREE Redditch friends are #cycling from John O’Groats to Land’s End to raise funds for #BirminghamChildrensHospital, writes Abi Cook. Aaron Atkinson, Jamie Phelan and Mitchell Ferris are doing the 933 mile trip in nine days to help sick children at the Second…
THREE Redditch friends are #cycling from John O’Groats to Land’s End to raise funds for #BirminghamChildrensHospital, writes Abi Cook. Aaron Atkinson, Jamie Phelan and Mitchell Ferris are doing the 933 mile trip in nine days to help sick children at the Second City centre of excellence. The journey began on September 2, they’re currently crossing the Pennines, and is set to finish in four days time at Land’s End this Saturday, September 14. The idea came about 18 months ago when Aaron decided he wanted to challenge himself, managing to persuade his two friends to join him. All three had seen first hand the care the hospital has provided, so there was no doubt it would be their chosen charity. This was brought home to them even more when the daughter of one of the trio needed an emergency operation after being rushed to the hospital. To add to the experience none of the three had any previous long distance cycling experience so the task presented a huge challenge for all involved. Jamie said: ‘We didn’t think anybody would take it seriously when we told them what we wanted to do so we are so proud to have raised so much money. “When we first started training, two of us didn’t even have a bike!” The lads have raised nearly double their £500 target and money is still being donated via their Just Giving page. Support driver Billy Ferris said: “Everybody is just so proud of them. “They’re all starting to get tired now but they have worked so hard.” The team are averaging around 100 miles a day which takes them about 12 hours and have their eyes fixed firmly on Land’s End.
#HappyHumpDay from me & Mama 🙌🏽 Today we are feeling #blessed & very grateful to @cavuhb #liverpoolchildrenshospital #birminghamchildrenshospital @birthbetter @birth_trauma_association_uk @redbalwncoch & all of our family & friends for the support they have…
#HappyHumpDay from me & Mama 🙌🏽 Today we are feeling #blessed & very grateful to @cavuhb #liverpoolchildrenshospital #birminghamchildrenshospital @birthbetter @birth_trauma_association_uk @redbalwncoch & all of our family & friends for the support they have given us over the past 6 months. 💯 Despite having a difficult #pregnancy a #traumaticbirth (& me not having the easiest start in life) we have both been able to come out of it both #happy & #healthy ❤️ Mama would also particularly like to thank my Daddy, Mam-Gu, Granddad & my Aunties & Uncle’s, she says they have been her rock(s) throughout & she cannot begin to express how much she loves & appreciates everything they have done for us & continue to do so 🤗 We hope everyone is having a Happy #Humpday & thank you to our followers for your support, engagement & kind words😊 ANDDDDDDD last but not least, a massive #thankyou @tilly_and_bella @ezrabellas @thelittlesensorybox @bibblezbibs @bixikids @babease @mwncicymru for providing us with the opportunities you have, we are #overthemoon to be repping the best brands & of course loving all of our #gawjus goodies🙌🏽⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ —————————————————————— ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ #gawjgeorge #curiousgawj #nicubabies #preemie #prematurebaby #babiesofinstagram #natureplayseptember #mummydiaries #motherhood #septembernicuawarenessmonth #mothers #mummyblogger #nicubabies #tagfairlike #tagfairtalk #mumsclikes #mummagrowxl #birthtraumarecovery #nicuawarenessmonth
#SALE! Bag yourself some amazing bargains with up to 50% off in our Fundraising Hub. Plus with 100% of the profits going straight to our charity, you can treat yourself to some guilt-free shopping! 🛍️ Link in bio. 🎈 🎈 🎈 #charity #charityshop #childrenshospital…
This is Tara & her Oncologist Dr Dave today. Tara was diagnosed with kidney cancer (Wilms Tumour) aged 4 and had chemotherapy and her left kidney removed. The “W” in WAGR syndrome stands for Wilms tumor. Approximately 50% of children with WAGR syndrome will…
This is Tara & her Oncologist Dr Dave today. Tara was diagnosed with kidney cancer (Wilms Tumour) aged 4 and had chemotherapy and her left kidney removed. The “W” in WAGR syndrome stands for Wilms tumor. Approximately 50% of children with WAGR syndrome will develop Wilms tumor. Periodic screening should begin at birth or upon diagnosis of WAGR syndrome. Screening for Wilms tumor consists of abdominal ultrasound examinations every 3 months. #wilmstumour #wagr #wagrsyndrome #bch #birminghamchildrenshospital #raredisease #oncology #zebra #chromosomedisorder #chromosomalabnormality #chromosomaldeletion #WT1 #PAX6 #oncologist #nephrectomy #nephrology #aniridia #genitourinarymedicine #genitourinaryoncology #urology #genetics #geneticist #learningdisability #kidney #cancer #childhoodcancer
Day away from work today as Ted is having his wiggly (central line) taken out as his treatment now in maintenance means less drips and less frequent access. Will be really nice to be able to go swimming any have proper baths fo Ted! #keepdancinglittleted…
So we had a busy weekend... A little cut that James got on his foot on holiday got infected yesterday and turned nasty really quickly. I took him to a&e at 3am this morning. Loooong wait, X-ray and then lanced and drained it and wrapped it up. Left hospital…
So we had a busy weekend... A little cut that James got on his foot on holiday got infected yesterday and turned nasty really quickly. I took him to a&e at 3am this morning. Loooong wait, X-ray and then lanced and drained it and wrapped it up. Left hospital about 9am this morning with strong antibiotics for a week which we are literally having to hold him down to take 😣 They were thinking about admitting him though so really need to get the medicine in his system. Poor thing is ok now but is going to be off school for a few days. Luckily September has turned out to be a slow month for me work wise! #mumslife #birminghammum #solihullmum #birminghamchildrenshospital #nhs #workingmum
August: 30 Day @thebodycoach Challenge ✔ Challenge complete This was a really fun challenge. I enjoyed all the workout videos and making my own. #charityfundraiser #birminghamchildrenshospital #charity #youngfundraiser #thebodycoach #30daychallenge #exercise…
WOW WOW WOW WELL DONE MACEY!!!! 5k in 32 mins. What a time! We’re so proud of you for achieving this and sponsoring Avas Angels - you’re making such a difference to families who’ve got poorly children in hospital - you’re amazing - thank you. IF YOU’RE INSPIRED…
WOW WOW WOW WELL DONE MACEY!!!! 5k in 32 mins. What a time! We’re so proud of you for achieving this and sponsoring Ava's Angels - you’re making such a difference to families who’ve got poorly children in hospital - you’re amazing - thank you. IF YOU’RE INSPIRED by Macey, please like, share and donate: https://www.justgiving.com/fundraising/kelly-parkes1 @birminghamchildrenshospital #birminghamchildrenshospital #BCH #picu #bwch #5k #garmin
Grandma cuddles, a perfect Saturday 💕💖💕💖 xxxx #birminghamchildrenshospital #family @katiefisher2017
Remembering Elijah ❤️ Picnic & Walk 👼🏽 #birminghamchildrenshospital
When life gives you a hundred reasons to cry, Show life you have a thousand reasons to smile. Its been a year since 3 month old Riley very suddenly went into heart failure, suffering 3 cardiac arrests and being placed on ECMO. Riley was given just 2% chance…
When life gives you a hundred reasons to cry, Show life you have a thousand reasons to smile. It's been a year since 3 month old Riley very suddenly went into heart failure, suffering 3 cardiac arrests and being placed on ECMO. Riley was given just 2% chance of surviving a second emergency open heart surgery. Riley was suffering from Pulmonary stenosis, which we already knew, however within a week it had gone from MILD to SEVERE. The artery to the lungs was pretty much blocked meaning it was difficult for blood to reach the lungs to pick up oxygen. Without enough oxygen, the heart and body cannot function as they should. On top of this his coronary arteries that deliver the oxygenated blood to the right side of the heart hadn't grown since he was born and no one knew about it! So the left and right side of his heart was failing him no wonder he was in so much pain and had 3 cardiac arrests. We were given a decision no parent should ever have to make. Riley was extremely tired. Option 1, take Riley back to ICU and let him die in our arms surrounded by the 2 people that love him the most. Option 2 Professor Jones (he did Riley's first Open Heart Surgery) can make the Pulmonary Artery wider and try and stretch the coronary arteries but there was only a 2% chance Riley would survive meaning he would die on operating table. What decision is that? Who would we be keeping him alive for him or us? What if we put him through unnecessary pain? How on earth do we make the right decision? We needed to decide now, we had no time to think about it. But it was Jordan that made me realize if we didn't give him a chance we would live life thinking what if. I knew then that our baby boy had fought this much, he deserves to have that chance. After a very long 12 hour surgery, he was out of theatre and back on ICU. After a very long stay in hospital, he was discharged. This year hasn't been easy and Riley has had plenty of up and downs but just look at his smile, he certainly lights up a room. We are so thankfully for every second of every day with our living, breathing, miracle, who is defying the odds one heart beat at a time. Our Heart Hero ❤
The day i ran first 10k to raise money for the #birminghamchildrenshospital in my target time of 50 minutes despite a minor injury which i managed to work with/around. I raised £540 in total which i was over the moon about! To think i remember a time where…
The day i ran first 10k to raise money for the #birminghamchildrenshospital in my target time of 50 minutes despite a minor injury which i managed to work with/around. I raised £540 in total which i was over the moon about! To think i remember a time where i couldn't even handle a 2 minute ride on the crosstrainer! Its funny how things change when you train your body consistently and eat correct! If you would like to increase your fitness levels just like me, please drop me a direct message or an email over to jess @revivalfitnessandperformance.uk and i will be in touch as soon as! #fitness #performance #coach #coachrevival #exercise #health #running #fitnessmotivation #consistency #dedication #charityrun #revivalfitnessandperformance #teamdesfitness
Not long until 20 of us climb to Britians highest point. Thank you so much to all those who have donated online and in other ways ! The support to raise so much is incredible! If you havent already please chuck in a couple of quid if you can do! We have…
Not long until 20 of us climb to Britians highest point. Thank you so much to all those who have donated online and in other ways ! The support to raise so much is incredible! If you haven't already please chuck in a couple of quid if you can do! We have 2 spaces left for this so if you fancy joining in please drop me a message. We will be departing Monday 9th sept morning to climb on Tuesday and return Wednesday 11th. #birminghamchildrenshospital #bennevis #fortwilliam #fatmanupamountain
Completed my first week of placement at Birmingham Childrens Hospital ✔️ . Ive been with the gastro team this week and have seen patients with: - Coeliac disease - Ulcerative colitis - Crohns disease - Short bowel syndrome - Gastrostomy - Phenotypic diarrhoea…
Completed my first week of placement at Birmingham Children's Hospital ✔️ . I've been with the gastro team this week and have seen patients with: - Coeliac disease - Ulcerative colitis - Crohn's disease - Short bowel syndrome - Gastrostomy - Phenotypic diarrhoea - Pierre-Robin syndrome - Intestinal atresia - Hirschsprung's disease - Marfan syndrome - Patients requiring PN 💉🏥 . One thing I did not expect to see this week was a patient in refeeding after 3days of PN even after the nutritional support team followed the correct procedure to try and prevent this from happening 🛑 . #placement #studentdietitian #RD2B #paediatricdietetics #birminghamchildrenshospital #whatdietitiansdo #refeeding #gastroteam #gastrointestinalspecialists #clinicaldietetics #learning #rareconditions #paediatrics
One week down, one to go..we’re on house rest keeping Arch away from any bugs as he has to be fit and well for his op! So far so good 😀 #cochlearimplant #cochlearimplants #cochlearimplantkids #birminghamchildrenshospital #operation #operationpreparation #houserest…
I am appealing to you for something that is very close to my heart and asking if you could help with a rather wonderful project. Windows in every building, whatever it may be, are just as important as what as what goes on within the building itself. They…
I am appealing to you for something that is very close to my heart and asking if you could help with a rather wonderful project. Windows in every building, whatever it may be, are just as important as what as what goes on within the building itself. They are a huge focal point and what could possibly be more comforting for a sick child when entering a hospital to see one of their favourite Roald Dahl characters emblazoned on stained glass. Hospitals can be frightening places and the windows will shine colour, joy and light relief into the experience of anyone arriving there. Together with Birmingham Children’s Hospital my mother and Sir Quentin Blake are planning to create a series of inspirational stained glass windows in the entrance of the hospital’s Children’s Cancer and Rare Diseases Centres. The windows will celebrate some of Roald Dahl’s most beloved characters and will create a magical impression, reassuring parents and children that they are among friends. Quentin Blake has designed the windows, samples have been made and the manufacturer in Birmingham has been selected. Most of the funds have been raised, but the project still needs another injection of about £100,000. If you think that you would like to contribute to this magical cause please visit www.bch.org.uk/donate/roald-dahl-window-fund/100/credit-card Many thank you’s in advance - every penny counts so no donation can be too small and please do pass on to anybody that you think might want to contribute. #birminghamchildrenshospital #birminghamchildrenshospitalwindows #roalddahlwindows #quentinblake #quentinblakewindows #sickchildrenshospital #sickchildren #childrenscancer #rarediseasescentre #seriouslyillchildren #seriouslyillchildrenandtheirfamiles #stainedglasswindows #stainedglass #magicalimpressions #awindowintotheimagination
On Saturday we had an unexpected visit to #birminghamchildrenshospital as Max had woken up with croup the night before and was really struggling with his breathing. The hospital was brilliant and gave him meds to help him straight away, and then while we…
On Saturday we had an unexpected visit to #birminghamchildrenshospital as Max had woken up with croup the night before and was really struggling with his breathing. The hospital was brilliant and gave him meds to help him straight away, and then while we had to stay in for monitoring to make sure the meds had helped this was keeping him occupied, along with abig touch screen Max enjoyed turning off more than anything! #birminghamchildrenshospital #poorly #croup #childhoodunplugged #motherhood #sickbaby #steriods #busywall #hospitalvisit #allbetternow #bibblezbibs #toddlerlife #busybody #intoeverything
I will be participating in the Birmingham Half Marathon on 13th October. All donations will be donated to the Birmingham Childrens Hospital to raise the vital funds needed to make a real difference to all who use the hospital. Your support empowers the hospital…
I will be participating in the Birmingham Half Marathon on 13th October. All donations will be donated to the Birmingham Childrens Hospital to raise the vital funds needed to make a real difference to all who use the hospital. Your support empowers the hospital to take innovative approaches to treating some of the sickest children in the UK and curing childhood diseases. #birmingham #westmidlands #childrenshospital #birminghamchildrenshospital #charity #donate #savelives #children #uk #marathon #marathontraining #simplyhealth #greatbirminghamrun #target #help #teambch #2019
Hey guys today I had my plaster-cast fitted following my Botox treatment. This will continue to help stretch my muscles and help reduce symptoms from my hemiplegia. I was also blessed to spend quality time with my Grandma and Auntie who came to visit today…
Me & my biggest sister @ty.rosa the annoying one as you can see when you swipe left. I still love her loads though❤️❤️ #hemispherectomyfoundation #hemispherectomyawareness #hemispherectomykids #hemisphreotomy #birminghamchildrenshospital #akeemsjourney
Raised over £1000 for Birmingham childrens hospital and we are soo grateful and thankful for how well you did with my baby cousin lexis heart operation. Thank you so much xx 🥰❤ #birminghamchildrenshospital #birminghamchildrenshospitalcharity #⬆️£1000😲 #heartoperation…
We are 1 year (and 1 day) #kidneystrong it has been a tough and crazy year but it has made the world of difference to isaac. There have been many ups and downs to these journey that is nowhere near over. We are waiting for a date for his next big op but nothing…
We are 1 year (and 1 day) #kidneystrong it has been a tough and crazy year but it has made the world of difference to isaac. There have been many ups and downs to these journey that is nowhere near over. We are waiting for a date for his next big op but nothing will take away from how amazing this experience has been for him. #1yearkidneystrong #invisibleillness #kidneydisease #chronicillness #crazychild #livingdonor #recycledparts #lifeaftertransplant #hospital #birminghamchildrenshospital #alwayshappy
AWA Wrestling returns to Kingswinford be there or miss out #wrestling #birminghamchildrenshospital #readytorumble
Part two of physio today.. I’m working hard my on left sided weakness.. 💪🏽 #physio therapy #hemiplegia #hemispherectomykids #akeemsjourney #birminghamchildrenshospital #igotthis
Another great day on physio worked on my arms today.. check me out..I can pick up a ball .. skills 💯🙌🏽 #hemiplegia #hemispherectomykids  #igotthis #birminghamchildrenshospital #physiotherapy #akeemsjourney
It’s Neonatal Intensive Care Awareness Month! Only right to show off my little cub back when she spent the first week of her life in Birmingham’s neonatal unit, hardest week of my life. Emotions already high after going through a traumatic labour and emergency…
It’s Neonatal Intensive Care Awareness Month! Only right to show off my little cub back when she spent the first week of her life in Birmingham’s neonatal unit, hardest week of my life. Emotions already high after going through a traumatic labour and emergency c section and then to be told your baby may need surgery and is being treated for suspected sepsis. All by myself sat at her bedside (like I’d be anywhere else) in a city I’d never been to before, days after surgery with only a few change of clothes and having to wash in a tiny sink, unable to buy food because my baby brain forgot the pin to my bank card 🙈 (thank you to the nurse who noticed I hadn’t eaten and got me vouches for the cafe) One thing I will never forget “take as many photos as you can just in case”. The most petrified and broken I have ever been. And now she is 2 on the 30th and is absolutely smashing the toddler stage (I have the grey hairs to prove it😂). The staff on that unit were amazing and definitely deserve recognition for their work! Not only did they take such good care of my precious little girl but they also kept checking up on me and giving me emotional support. ❤️ I can’t believe it’s been nearly 2 years, time really does fly by! #neonatalintensivecareunit #birminghamchildrenshospital #neonatalawareness #shestough #mygirl #mybestfriend
#Repost @alpeshconductor with @make_repost ・・・ Going back to where it all began this weekend! In 2015, Birmingham violin & viola teacher Lucy Akehurst gave me my very first public conducting opportunity with the Bournville String Orchestra - an orchestra…
#Repost @alpeshconductor with @make_repost ・・・ Going back to where it all began this weekend! In 2015, Birmingham violin & viola teacher Lucy Akehurst gave me my very first public conducting opportunity with the Bournville String Orchestra - an orchestra made up of students, amateurs, graduates and Birmingham-based or born professionals. This Sunday I’m looking forward to going back to this orchestra of talented young players which gave me that all-important opportunity and performing some great music with them! All proceeds will go to Birmingham Children’s Hospital Charity 🏥 • • • • • #bournvillestringorchestra #birmingham #stringorchestra #charityconcert #birminghamchildrenshospital #mozart #bach #jsbach #bärenreiter #bärenreiterurtext
Going back to where it all began this weekend! In 2015, Birmingham violin & viola teacher Lucy Akehurst gave me my very first public conducting opportunity with the Bournville String Orchestra - an orchestra made up of students, amateurs, graduates and Birmingham-based…
Going back to where it all began this weekend! In 2015, Birmingham violin & viola teacher Lucy Akehurst gave me my very first public conducting opportunity with the Bournville String Orchestra - an orchestra made up of students, amateurs, graduates and Birmingham-based or born professionals. This Sunday I’m looking forward to going back to this orchestra of talented young players which gave me that all-important opportunity and performing some great music with them! All proceeds will go to Birmingham Children’s Hospital Charity 🏥 • • • • • #bournvillestringorchestra #birmingham #stringorchestra #charityconcert #birminghamchildrenshospital
There is a very special story behind this pair of #socks..... #mygrandson had #meningitis followed by a #stroke over Christmas and NewYears eve 2018...these are the very same socks he was wearing on ICU at #birminghamchildrenshospital we nearly lost #louis…
There is a very special story behind this pair of #socks..... #mygrandson had #meningitis followed by a #stroke over Christmas and NewYears eve 2018...these are the very same socks he was wearing on ICU at #birminghamchildrenshospital we nearly lost #louis but we didn't and tomorrow at little over 8 months later Louis starts back to school in year 1. He's going to wear these socks tomorrow with pride because they tell a story, the story of the #theboywholived.... #strokeawareness #strokesurvivor #meningitissurvivor #meningitisawareness #childhoodstroke #childhoodstrokeawareness #pediatricstroke #pediatricstrokeawareness #disablednotinvisible #thrivernotjustasurvivor #loubeylou #ilovebeingagranny #harrypotter #harrypottersocks #gryffindor #love
Can’t believe this was a year ago. My baby learning to swallow with a dummy, loving his head being touched and he was still an NSW warrior. This was a very dark time after spending 3 months in hospital but the end was in sight. The 17th September will officially…
Can’t believe this was a year ago. My baby learning to swallow with a dummy, loving his head being touched and he was still an NSW warrior. This was a very dark time after spending 3 months in hospital but the end was in sight. The 17th September will officially mark a year since discharge, a year of Seb knowing home as Stratford not BCH. He has come so far since then. We will forever be eternally grateful to the nurses, surgeons, doctors, registrars, anaesthetists, cleaners, volunteers and other families who helped us see the light in the dark #tinybaby #birminghamchildrenshospital #nsw #comforter #hospitallife #bornunabletoswallow #tofbaby #chargesyndrome #warrior #myboy
A welcome day of clouds & shade in Blantyre. This photo was taken towards the end of my time in Malawi and as I continue to reflect on my experience @bwc.malawi gets ready and prepared for another nurse to go there for 6 months. Continuing the important and…
A welcome day of clouds & shade in Blantyre. This photo was taken towards the end of my time in Malawi and as I continue to reflect on my experience @bwc.malawi gets ready and prepared for another nurse to go there for 6 months. Continuing the important and forever growing link between the Warm Heart of Africa and Birmingham Children’s Hospital. 🏥💜 . . . . #bwh #bch #birminghamchildrenshospital #volunteer #nursevolunteer #experience #education #travel #malawi #blantyre #lotstolearn #lotstosee #tropicalmedicine #warmheartofafrica #🇲🇼
50 miles in 24 hrs! Well done everyone - what an achievement! Thank you so much for raising such a fantastic amount of money for Avas Angels - every penny will be going to support families with sick children in hospital. You should be feeling very proud…
I think my child is a chocoholic! 🍫 . I’ve been dreading this weekend for a while... . But thanks to the doctors, surgeons and nurses it has been a breeze. . Kili has been so brave and his recovery as astounded me. . Although I think he is missing his bath.…
I think my child is a chocoholic! 🍫 . I’ve been dreading this weekend for a while... . But thanks to the doctors, surgeons and nurses it has been a breeze. . Kili has been so brave and his recovery as astounded me. . Although I think he is missing his bath. . He has enjoyed all the fuss and our lovely, (yet very tiring) day put in Birmingham. . What was a dreaded weekend has turned out to be actually quite nice. . Thank you NHS. . Thank you staff. . Thank you Ronald McDonald house. . . . #killianphoenix #hydrocaphalus #hydrocaphaluswarrior #hydrocaphelussurvivor #Birmingham #birminghamchildrenshospital #nhs #birminghambeachbar
Home time! Chemo level in his bloods is down to 0.12 after 72 hours so were outta here! Until Weds. Gotta say as the caregiver Im exhausted. Cant cry in front of him, very little sleep which is always broken by obs, wee stops (his urine output is measured…
Home time! Chemo level in his bloods is down to 0.12 after 72 hours so we're outta here! Until Weds. Gotta say as the caregiver I'm exhausted. Can't cry in front of him, very little sleep which is always broken by obs, wee stops (his urine output is measured so I trot to the sluice every time, say, 8 times per night) pumps running out, etc. A couple of beers, a couple of cries and a bit of kip and I'll be re energised. #hometime #ivedonemytimeimgoinghome #chemo #cancerdiaries #osteosarcoma #primarybonecancer #cancersucks #fuckcancer #birminghamchildrenshospital #ward18 #beautifulboy #carer #caregiver #cancermama #emotionalmess
Grab Any Size Pizza for only £9.99 each when you buy 2 or more. Plus, add 2 Sumptuous Sides for only £5, and well dough-nate £1 from each order to your local hospital #QueenElizabethHospitalBirmingham #HeartlandsHospital #SolihullHospital #BirminghamChildrensHospital…
Grab Any Size Pizza for only £9.99 each when you buy 2 or more. Plus, add 2 Sumptuous Sides for only £5, and we'll dough-nate £1 from each order to your local hospital #QueenElizabethHospitalBirmingham #HeartlandsHospital #SolihullHospital #BirminghamChildrensHospital So step up, and don’t miss out! You know you want to… dominos.co.uk 🍕 Ends 8th Sep. Participating stores. #Dominos #Pizza #OfficialFoodOf #Birmingham #HelloBrum #FoodiesOfBirmingham #Brumtopia #ThisIsBham #ILoveBrum #BrumTime #IgersBirmingham #BigOnBrum
Thank you @heroes.heart a little package of gifts came through the post this morning! My very own hero ♥️ Freddie was a happy little man with his new bear🐻 Love this book to! So kind 🥰♥️#amazingcharity #love #hearthero #charity #chdwarrior #heartwarriors…
I think my husband is AWESOME!! Here he is having a little 13 mile run from home to the caravan. He is training so hard for the half marathon to raise money for Birmingham Childrens Hospital.❤ They are an amazing hospital and saved Jordans life when he…
I think my husband is AWESOME!! Here he is having a little 13 mile run from home to the caravan. He is training so hard for the half marathon to raise money for Birmingham Children's Hospital.❤ They are an amazing hospital and saved Jordan's life when he was little. #halfmarathon #birminghamchildrenshospital #myawesomehusband
Lovely day meeting the Birmingham Metabolic Team #metabolic #birminghamchildrenshospital #nurse #childrensnurse
Feeling forever grateful to a phenomenal hospital 💙🏥💙. Our cheeky little chappy is back! #bch  #birminghamchildrenshospital #birminghamchildrenshospitalcharity #postop #stentout #pyeloplasty #alwayschewing
Got £50 in the pot so far -Thankyou to everyone that has ordered so far! I’m ordering today so if you want to add to the donation pot then pick your colour and message me x #birminghamchildrenshospital #charity #fundraise #tropic #natural #chemicalfree #vegan…
Fun day out. Skeletal bone scan. He is injected with radiation, a few hours later a whole body scan shows precisely where the tumour is as the radiation emits gamma rays, bit like a reverse xray. Yes thats right, we allowed (encouraged) somebody to inject…
Fun day out. Skeletal bone scan. He is injected with radiation, a few hours later a whole body scan shows precisely where the tumour is as the radiation emits gamma rays, bit like a reverse xray. Yes that's right, we allowed (encouraged) somebody to inject our child with radiation. Because why wouldn't you?! I know. #skeletalbonescan #radiation #gammarays #scan #tumor #childhoodcancer #osteosarcoma #primarybonecancer #whattheactualfuck #birminghamchildrenshospital #fundayout #fuckcancer #cancerblogger #cancersucks #cancermama
August: 30 Day @thebodycoach Challenge I love the body coach so much I did my own little video for all my friends so they can have a go at home 😁 Go see my page on facebook for the full video 🎥 Im almost done with my 30 day challenge but I will be carrying…
August: 30 Day @thebodycoach Challenge I love the body coach so much I did my own little video for all my friends so they can have a go at home 😁 Go see my page on facebook for the full video 🎥 I'm almost done with my 30 day challenge but I will be carrying on learning from the best role model ever and keeping myself fit and healthy 💪 #charityfundraiser #birminghamchildrenshospital #charity #youngfundraiser #thebodycoach #30daychallenge #exercise #fitness #kidfitness #healthykids #keepfit
Finally got the trainers for the Birmingham Half Marathon for Birmingham Children’s Hospital. Now to just get them on and get out running #teambch #charity #birminghamchildrenshospital #birminghamchildrenshospitalcharity #justgiving #sponsor Sponsor me here…