Facts💯 Repost from @dashofthis on Instagram: “We were in an exam room talking about pain. My doctor said he understood dealing with pain because…” using @RepostRegramApp - We were in an exam room talking about pain. My doctor said he understood dealing with pain because he had injured his shoulder a few months prior.
My first thought was, "You are better. That's not the same as chronic pain."
I know he meant well. He was trying to be empathetic. But he doesn't "get" chronic pain.
Yes, he had pain. Yes, it was hard. Yes, he had to push through it, work with it, suffer from it.
But it's not the same. He has relief now. He could work through the pain as best he could and put off the rest for later.
When you have chronic pain, you don't get a later.
Chronic pain affects everyone in different ways. It changes you. You forget what it's like to not be in pain. You forget who you were before. You forget what it's like to not have to adjust everything around your pain levels.
Even if pain levels change or you get a break, it's a never ending cycle.
What if he had to deal with knowing he was going to injure it again and again? Or that it wasn't going to go away next time? .
It changes life. It changes you. #chronicpain#chronicillness#chronicfatigue#cure#spoonie#spoonies#warrior#spoonTheory#spoonielife#spooniestrong#fibro#endo#Lyme#RSD#ALS#COPD#lupus#cfs#Crohns#invisibleillness#chronicFatigue#autoimmunedisease#autoimmune#disabled#disability#ButYouDontLookSick#anxiety
Hope’s facial expression is a mood😂😂😂 #BAGPHopie
Hey guys! It’s again been quite a while since my last post... I truly apologize. I’ve been going through A LOT health-wise, physically AND mentally. Recovery from surgery, Endometriosis, and the trauma that goes along with having been sick for so long has been so much harder than I thought it would be. My anxiety is still through the roof. I’m still medicating myself to take away pain and calm myself down. My depression’s still worse than it has been, though it has improved since I lowered my Orilissa dose. And over the last week I’ve been in SO much pain with my stomach, which makes my anxiety and depression flare up. AND I’ve been having really vivid, realistic HORROR nightmares. I keep waking up frightened, disturbed, and/or freaked out. Usually I feel like a snake is squeezing my chest and hindering my ability to breathe. So that’s super fun. I’ve— for the most part— noticed I’ve shut down in a way. It’s all too much. I’m super sensitive and I’ve cried more in the last month than I have in the last year. That’s CRAZY. I’m just a mess, guys. I’m trying, but I’m greatly struggling. Well wishes are still appreciated. I’ll take whatever I can get. 💗 OH! I attended therapy with a new therapist this past Friday as well. It was my first therapy session in years. I think— even though it was more introductory, this time— it went well! I think she’s a good fit for me, so far. Let’s hope I continue to feel that way. 🤞🏻 I have another appointment with her on Friday. 😊 I’m also getting my second post-op injection on Thursday! This’ll be my TENTH total injection... That’s wild. I’m so proud of myself. So so proud. I’ve endured so much and come so far and I’m continuing to fight for my health and my life. That’s HUGE. I just need to hang in there a bit longer, which I know is easier said than done, because good things are coming. I don’t know what, but I do know that they’re good. 😊 Note to self... Stay strong. Stay positive. You’ve got this. 🌞💛 I love you guys more than you know and I miss you lots. 💗
This is REALLY hard for me to post, but I need to have a starting point to work beyond. Thank you to everyone that's been stickin' it out with me on this #lyme journey. ❤️
It takes my breath away on day 730 just as it did on day 1. It’s something no one can get or will ever get. It’s not something you get over, move past, or let go of. It will forever be a focus, I will always dwell. I can’t therapy it away. I can’t pray it away. I can’t block it out. It’s there. It’s my reality.
Tis the season 🤧. These 3 babies right here - saving so many peeps. This is called the young living LLP combo (lavender, lemon, peppermint). #stopsneezing#pollenseason
Chronic pain in children with Lyme disease
Neuropathic pain in childhood is a significant public health concern writes Dr. Simons from Boston Children's Hospital in the journal Pain.1 “approximately one quarter of patients who present to our tertiary care pain clinic are diagnosed with neuropathic pain (complex regional pain syndrome [CRPS] and non-CRPS).” writes Dr. Simons.1
The author estimated that neuropathic pain is common. “approximately 3–9% of children suffer from chronic neuropathic pain.” writes Dr. Simons.
The author raised short and long-term concerns for children with neuropathic pain. “Beyond the personal suffering and persistent physical and economic consequences for families, chronic pain in childhood can predispose the development of adult chronic pain.” writes Dr. Simons
I have seen neuropathic pain in children with Lyme disease.
Do you know a child with neuropathic pain associated with Lyme disease? Please join the conversation in the comments below.
1. Simons LE. Fear of pain in children and adolescents with neuropathic pain and complex regional pain syndrome. Pain. 2016;157 Suppl 1:S90-97.
This is one of a series of short videos to explore topics I have seen in my practice. Dr. Daniel Cameron .
Spring has sprung y'all.
Please check yourself for ticks regularly. I learned to check myself in the morning and at night. I learned that ticks take about 12 hours to fully dig in. So morning and night is pretty thorough. Even if you were in the woods for a walk and went home, check yourself the next morning. They can hitchhike on your clothes, in your hair. I know a lot of people who have suffered from Lyme disease. It is a tenacious infection.
But like, also, please go outside!!! It is absolutely SPECTACULAR right now!! The rivers are gushing with snowmelt and the birds chirp anew! Don't let the ticks stop you, just be aware of them, and check yourself!
Pau d’Arco is a powerful medicinal herb that is widely used in the treatment of cancer, arthritis, candida, and bacterial and viral infections. It is an effective detoxifier and and purifier of the blood and is also known to be highly beneficial for asthma, diabetes, herpes, leukemia, anemia, hepatitis, cystitis, gastritis, Hodgkin’s disease, lupus, and Parkinson’s disease. One of the most profound benefits of pau d’arco is its anti-tumor compounds that can help shrink and eliminate tumors from the body. This is one of the reasons why pau d’arco has become a popular herb for those battling cancer. Pau d’arco also contains a compound called lapachol which has been shown to activate lymphocytes and white blood cells which significantly strengthens the immune system. Pau d’arco also has the ability to provide pain relief for those suffering with nerve pain, joint pain, or muscle pain as well as the pain that can sometimes accompany post-chemotherapy. Pau d’arco is also excellent at helping to remove parasites from the digestive tract and can help the body balance out from e.coli or salmonella poisoning. Pau d’arco is often recommended to be used as a mouthwash for gum and tooth infections and as a douche for candida and yeast infections. Topically, pau d’arco cream can be applied as a cream to help speed up the healing of cold sores, diaper rash, athletes foot, thrush, nail fungus, psoriasis, eczema, ringworm, bruises, and abrasions. Pau d’arco tea can be made by simmering 1 ounce of herb in a pint of boiling water for 20-30 minutes. 1/2-1 cup of this tea can be taken 3-4 times a day. Pau d’arco can be found in tincture, extract, tea, capsule, and cream form online or at your local health food store.
👦🏻👩🏼: There is no need to surround yourself with toxic people. Healing is a process that requires support, love, and a judgement free zone. If you have friends or acquaintances that disrupt your mood, increase your stress, and overall just tear your down then it might be time to let them go. Life is too short to deal with those people. Double tap and comment if you agree.
Follow 👉 @how.u.feeling 👈 for more!
Pulsed Electro Magnetic Field Therapy.. and some chest hair 😅 The same technology #NASA uses to keep astronauts from getting sick in space due to the lack of Earth's magnetic field. 🚀🛸👽 PEMF machines work in conjunction with the body’s own recovery processes to relieve pain by restoring cells’ ability to function efficiently. It works effectively to re-align the electric potential of our cells. PEMF therapy was FDA approved decades ago. #Lyme#ChronicLyme#pemf#lymedontkillmyvibe#healing#technology
What words do you need to hear most? •
Many of us not only deal with biased doctors and rude strangers, but with friends and family who do not understand what we are going through. They have no idea what to say when we express the pain we are in. If there was one thing you wish they would say, what is it? •
Leave your answer below and tag someone who wants to help, but doesn’t always know the right thing to say
#Infografía | ¡Ojo con las garrapatas! Cualquier ser humano es propenso a contraer la enfermedad de Lyme si es mordido por estos ácaros. Más información en nuestro portal. [Parte1]
#Infografía | ¡Ojo con las garrapatas! Cualquier ser humano es propenso a contraer la enfermedad de Lyme si es mordido por estos ácaros. Más información en nuestro portal. [Parte 2]
“The ache” started yesterday — Im sure my hair will start falling out soon. With that in mind I’ve decided to throw a going away party for my hair this weekend. Party favors will be hair products I will no longer need & I’m hoping for some cool hats for us to model. All (not weird) suggestions for party activities welcome! 👍🏻👩🏻🦲
Picture credit to “The Bright Hour” by Nina Riggs
In the southeastern CT area? I’ll be giving a talk on my painting and drawing process this Thursday at 7pm @lymeart. $5 for members, $10 for non members. I’ll discuss drawing and painting techniques I learned from studying old masters as well as from numerous contemporary painters. #painting#process#trusttheprocess#lyme#ct#contemporaryart
All about bartonella treatments. See my latest video and written guide. treatlyme.net/guide/kills-bartonella-a-brief-guide #lyme#lymedisease
Life with a chronic illness isn’t fun and games. It’s not glamours. But let me tell you it has shaped me into a strong individual, who has learned to stand up for herself and recognize her strength! I’ve learned so much about myself! I’ve been through a lot, and it’s not over, but I’m confident I can handle it! Some days I might feel like my world is caving in, but I remind myself I’ve survived and accomplished 100% of my worst days!
So I try to focus on the victories, even the small ones! Because if I let the negatives consume my life I’ll just live a very sad life! •
So here are some of the big moments and some of the hardest moments. This journey has only begun, but I can’t wait to see what the future holds! •
Thanks for following me on this journey!
👦🏻👩🏼: Monday’s are often the worst day of the week. You get overwhelmed and negative about the long work week ahead. This negativity can translate into self doubt about what you can do in your life. You might say your are in too much pain, to fatigue, to heavy, to skinny ect to achieve all you want in life. Let’s change the norm and start with something positive this Monday. Comment with something nice about yourself.
Follow 👉 @how.u.feeling 👈 for more!
Today is another forced day of rest. Even when on holiday, my health will dominate and I struggle. Feeling guilty and frustrated that I can’t join everyone in the days activities. Over explaining why I have to rest, only to be met with kind eyes and a reminder that it’s OK. In the end I have no choice but to surrender, and just take the day. And, luckily for me I’m in a beautiful setting surrounded by sunshine and palm trees. And, the time to create art. (And make plans on how I’m going to kick Lyme’s ASS)
Back on track after my first cheat day 🐢 #keto
My main goal with doing the #keto diet is to reduce inflammation due to an #autoimmune disorder #rheumatoidarthritis .
It’s amazing how much it reduces symptoms! I’m in #remission but still deal with pain issues and prefer not to take pain meds.
Within 3 days of keto, my knee and hand pain is basically gone.
I know it’s this #diet because the times I get off track, pain always comes back.
I lost 10 pounds which is pretty great considering I didn’t work out but now it’s time to #tone and get this #booty#poopin !
Just sharing for those of you who may have inflammation issues or know someone who does .
At the Essential Oil Symposium for Medical Professionals back in 2017, one of the physicians mentioned that a drop of black pepper oil under the tongue (or via capsule) is great for supporting brain inflammation. Now there are several things can fall under the category of brain inflammation including: #brainfog#memoryissues, #autism, #lyme, and more. If you have a little one that could benefit from this, make a roller bottle & dilute this oil with a carrier oil and apply to the spine. This is also a great roller to help reduce the #itchiness and #sting that comes from #bugbites.
If you need some support with #constipation, #diarrhea, or #gas, you can actually take a drop or two internally in a capsule or apply topically on the #abdomen. Always dilute since this is a hotter oil. If you are like me and have cold hands and feet, you could apply this with a warm compress to help support circulation and blood flow to #muscles & #nerves. This is also an amazing oil to help with #jointpain or #musclepain.
Emotionally, #blackpepper is the oil of unmasking. It helps individuals dig deep within the less understood parts of the self. It can help surface trapped or repressed emotions & promote more authenticity, courage, self-awareness, & motivation.
Interestingly enough, #blackpepper shares a similar chemical structure to #Melissa essential oil.
If you haven’t tried #blackpepper yet, it’s a great oil to add to your daily routine.
What are your favorite ways use black pepper?
Thanks, Dr. Laura Ricci for the info!!! #doTERRA#doterraliving#oilymomma#oilsforlife#essentialoilsarelife#autoimmunemomma#warrior#gethealthy#positivechanges#fiercefamily#brainsurgerywarrior#essentialoillove
Our ambassador (rapper and singer) Pete Philly about Lyme
This is my first national interview where I speak frankly about what Lyme was like for me and how the lack of acknowledgement and help for people who have this disease almost made me lose the roof over my head.
There’s a #petition I would like you to sign so that people who are diagnosed get actual coverage from the insurance companies that so far hide behind a false #guideline. A 29 year old girl recently committed #suicide because of having this disease, there was no help for her either. I don’t want anyone else to experience the hell I’ve gone through, your help would be deeply appreciated! This is the link to the petition: https://iladsvoorlyme.petities.nl
Thank you! Pete Philly
Hey folks✌🏽 Been very busy with RENT the live rock opera I just performed in so haven't posted in a while... Health update: Lyme disease is still a BITCH 🤗 treatment #4 was started yesterday. More detoxing of the brain organs nerves everything & I'm STILL focused and rooted in my purpose. I do not like pharmaceutical medication at all... so being in a position where i literally dont have a choice but to take certain things bc my lyme infection is in the brain & organs is.... frustrating. However I know that it's all leading me back to full health and every day im blessed nonetheless. Today is full of REST and RECOVERY💪🏽 much love IG ♥️
Here’s the story of how I’ve eaten myself to better health 😃🍊🍉🥑🥬 So in the beginning of 2017 I got sick with mononucleosis (Epstein-Barr Virus) and as time went by I was experiencing more and more symptoms. ⠀
By March 2018 I hit rock bottom, I went from being very active my whole life to not being able to leave my bed. This was such a horrible experience, literally a nightmare come true.
I would have never imagined that I would have to give everything up, I wasn’t able to do anything at all: i had to quit studying, sports, painting and seeing my friends. It was all just about surviving one day at a time. Every second my body was screaming and it felt like I was dying. Unfortunately the doctors had no real answers for me. Everything I tried didn’t help at all and people around me didn’t seem to understand me since my body looked fine from the OUTside.
Then one day my grandma showed me @medicalmedium ‘s book and said the described symptoms sounded just like mine. At that point I was desperate to try anything; my symptoms included:⠀
• Severe nerve pain
• Joint pain ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
• heavy legs⠀
• tingling sensations and numbness⠀
• Heart palpitations ⠀
• serious chronic fatigue ⠀
• Tinnitus ⠀
• Brain fog and dizziness ⠀
• Blurred vision and eye floaters ⠀
• Vertigo and balance issues⠀
• Sensitivity to light and sound ⠀
• Neurological asthma ⠀
• Tightness in the chest ⠀
• Hypothyroidism ⠀
• Food intolerances ⠀
• Muscle weakness ⠀
• Burning sensations and pain in the whole body⠀
And the list goes on.. but you get the point.⠀
By reading the book I found out that I was experiencing all of these symptoms because the Epstein-Barr Virus had attacked my body and inflamed my central nervous system.
After 10 months of eating an abundance of fruit and vegetables and drinking #celeryjuice ALL of my symptoms have decreased so much! 🌟🤩 I am slowly starting to feel normal again, the heart palpitations are GONE, tingling and numbness are GONE, tinnitus is GONE, no more food intolerances, heavy legs and crippling pain. And finally I am feeling a little less fatigued and the cognitive symptoms are disappearing as well!
CONTINUED IN COMMENTS ⬇️⬇️⬇️