La verdad queria subir esta fotito.
El lupus ha transformado mi vida de muchas maneras y recien estoy empezando pero apesar de todo he aprendido a ser fuerte.
que debes seguir aferrandote el día a día y sonreir por qué quizas el día de mañana no puedas ni disfrutar caminar.
actualmente estoy en esta batalla y la peleare junto a mi familia y amigos e saldre victoriosa como siempre he hecho.♡
It’s so funny. The one exercise that I swore I couldn’t do is the one I find myself thinking about so much. It’s taken my all not to go outside and try the stones some more. It’s so hard to force myself to take time to heal and get over this cold. I want more. I’m hungry for more. I need to find some work so I can afford to go to America’s Strongest Athlete with Disabilities. If you hear of anything, please let me know! Hey Antioch. Hire me! Sponsor me!
An ode to my port. My veins have been problematic (what part of me isn’t?) my whole life. They’re tiny, they hate needles, and they don’t like to work. Can’t get anything out, can’t put anything in. It has been genuinely traumatic over the years. My parents have had to watch in horror as I’ve been poked, prodded and scarred—a nightmarish experience for all of us. I never cared about what surgery I needed to have or what medication I was being put on—I only feared blood work and IVs. The pain. The angry nurses. Being made to feel like this was somehow my fault.
Enter the port. It’s a longer story than I need to share, but getting to this point was complicated. At long last though—here we are. This little friend in my chest has truly changed my life. Does my blood still clot? Yep. Do we still have trouble getting the blood out? Yep. But sometimes we need to just be thankful for the little things.
I no longer have a panic attack when doctors tell me they need to do a draw. I’m also able to teach people about how it works—whether it’s letting them touch it or just explaining the process. And in the end I’m just really grateful.
Remember my friends—you are not alone. Not ever. #invisibleillness#autoimmune#mixedconnectivetissuedisease#mctd#spooniestrong#spoonielife#spoonie#youarenotalone#support#medical#autoimmunedisease#lupus#lupusawareness#lupuswarrior#bekind#begrateful#illness#chronicillness
💜💜 #LupusAwareness Wear Purple 💜💜 March 20th is always hard... 22 years ago my world fell apart, my life changed, and my heart was left with a hole bigger than Texas... Pamela Yvette Boston, my cousin who was more like a sister and who I affectionately call my SisterCousin, passed away of complication from Lupus. Oh, how I miss her so! We took this picture 2 years ago while celebrating her life and legacy in preparation for our annual awareness walk.
Lupus is a chronic inflammatory disease that can affect various parts of the body, especially the skin, joints, blood, and kidneys. .
Lupus causes the immune system to attack the body's own cells and tissue. Common symptoms of lupus include achy or swollen joints, fevers, extreme fatigue and skin rashes. .
At the present time, there is NO CURE for lupus, but if diagnosed early, medications are available that can treat lupus symptoms in most patients. For the vast majority of people with lupus, effective treatment can minimize symptoms, reduce inflammation, and maintain normal bodily function. .
If you know someone living with Lupus, shout them out in the comments and send them some love, maybe a few kind words. 💜
Happy Birthday 🥳 my amazing mum Presh (Sandy 1st lady in ad...I make an appearance w/ her later). I’m so proud of you. Your strength coping w/ #lupus and raising 2 daughters! What an empowering example you were. Not only did you push through the pain you were so funny, encouraging and supportive.
I’m also so proud of the time you put into #lupusawareness , the medical world 🌎 knew little about it back then. Good on you for wanting others to understand it. I work in community and often think your community drive rubbed off on me.
I still miss you yet I do feel you with me every day 💕❤️ Happy Birthday you “Dirty Woman” I’m so lucky you are my mum, I love you 😍 #mum#birthdaygirl#family#love#proud
Since I got a decent nights sleep I actually managed to workout this morning 🙌 But my iPad wasn’t cooperating so I had to use my phone to play my workout so no video 👎 you can’t win them all right 🤷♀️
Gotta love chia seed pudding! Especially with chocolate! 😋 I try to eat chia seeds every day whether it’s pudding, in a salad or even when I’m baking. It’s a great antioxidant and a great source of calcium, iron, protein and omega-3’s which is awesome because my body doesn’t absorb any of those very well 😬 So it’s good to get extra whenever I can!
I AM GRATEFUL. I love this picture of us but I wasn’t going to post because it shows the #LUPUS mark on my face. But looking at it tonight, I know that it’s that mark on my face and him behind me that makes me love it. At some point in life, if the winds blow the right direction 🌬the stars align 🌟 the ground hog sees his shadow, you find a penny faced on headsyou see a shoot star and 2 rainbows 🌈 on the same day, your aunt gives you a rabbit foot key chain 🐇and you’re not experiencing mercury retrograde🚧 you will learn that love means HAVING EACH OTHERS BACK WHILE YOU DEAL WITH UNEXPECTED FUCKED UP CRAZY SHIT ON YOUR JOURNEY THROUGH THIS LIFETIME..........I’m grateful that this one has mine. 🙏🏽
Change is the end result of all true learning. - Leo Buscaglia
35p 당신이 소유하고 있는 것은 당신이라는 존재 하나뿐이다. 그러니 당신을 이 세상에서 가장 아름답고 다정하고 훌륭하고 멋진 사람으로 가꾸어라. 그럼 언제나 살아 숨쉴 수 있다
스스로를 비난하지 않고
반성하기 위해 남기는 기록
포기하지만 않으면 변할 수 있어
같은 실수를 반복하지 말자
Photo by. Unknown Specialist
About my autoimmune disease... .
My name is Yoshimi and I have had Lupus and Sjogren’s syndrome.
I was always getting sick as kid and my parents took me to the doctor, but no one knew what it was. Sjogren’s syndrome was rare in children that time. Symptoms, to mention a few, can be swollen lymph nodes and unusually high fever since I was little. It took several years to diagnose; not until I was 10 years old. Luckily, my symptoms gradually improved and I didn’t need to deal with medication until recent years.
I started having Raynaud’s symptom 4 years ago. That time, I worked long hours as social worker at a hospital and I didn’t take care of myself. I had joints pain all over my body, sever fatigue, butterfly rushes, weight loss, hair loss, and I was emotionally unstable. I was diagnosed with Lupus on Nov. 2017, and had kidney biopsy on Sep. 2018. It was stage 3 Lupus nephritis. My Kidney was attached by my own immune system. My doctor increased the doses of steroid and immunosuppressive medication since then.
Now, I am trying to improve my condition with vegan gluten-free diet and post recipes and ingredients on Instagram. I sometime talk about my disease and conditions to connect people like me. I hope someone would find my page helpful.
LUPUS adalah penyakit #inflamasi kronis yg disebabkan oleh sistim kekebalan tubuh yg keliru, sehingga mulai menyerang jaringan dan organ tubuh sendiri. Inflamasi akibat lupus dapat menyerang berbagai bagian tubuh ..misal kulit dan sendi
Lupus jg dikenal sebagai penyakit seribu wajah, krn gejala yg muncul mirip penyakit lain..gejala tsb tidak disadari..akhirnya terlambat untuk di tangani
Gejala LUPUS 🔸 Kulit mudah gosong
🔸 Gangguan pencernaan
🔸 Gampang lelah, lemah, deman dan pegal2
🔸 Pada kulit muncul ruam merah yg membentang di kedua pipi..mirip kupu2.. Kulit bersisik
🔸 Rambut suka rontok dan rasa lelah yang berlebihan
Penyakit ini banyak menyerang bangsa Afrika dan asia ..wanita lebih sering terkena dibanding pria..terutama usia..15 - 40 thn.. Timbulnya penyakit ini faktor adanya infeksi, pemakaian obat2an, terkena paparan sinar matahari, pemakaian pil KB dan stress
Penyakit LUPUS ini antibodi yg terbentuk dlm tubuh berlebihan, hasilnya #antibodi justru menyerang sel2 jaringan organ tubuh yg sehat. Kelainan ini disebut #AUTOIMUNITAS.
Penderita LUPUS.. tidak bisa terpapar sinar matahari.. mudah lelah.. ada beberapa member MCI yg terkena sakit LUPUS.. terbantu sakitnya dengan pengunaan BIOGLASS+ KALUNG AURA/BIO.. yang membantu menjaga stamina penderita LUPUS utk tetap fit.
Berikut beberapa testimoni dari penderita #Autoimun yang sudah ikhtiar dengan #Bioglass, siapa tahu Anda, atau teman Anda, atau saudara Anda ada yang membutuhkan.
Because sharing is caring 😘 💐Info & chat :
Better Life with MCI❤
I designed from scratch an American flag with the purple stripe to represent lupus awareness. We are strong together! Perfect for lupus walks. Available in 9 colors. Link in bio or visit LF-78.com #lupus_Strong_Together#lupus#walktoendlupusnow
Há poder nas nossas #palavras
Como você está usando as suas?
Pra dizer que tá insuportável, que você não aguenta mais, pra reclamar de tudo e todos pq está doente?
Ou pra fortalecer sua fé, pra trazer esperança, pra passar confiança e perseverança pras pessoas próximas?
Suas palavras tem poder inclusive para trazer a cura, o bem estar, a felicidade etc.
Algumas coisas que eu faço para me ajudar a seguir em frente:
🙌🏼Agradeça pq existe tratamento
💊antes de tomar seus comprimidos Declare que as medicações não vão te dar efeitos colaterais 💉Fale sempre: tá doendo agora mas vai passar
💒Escute, leia palavras que fortaleçam sua fé! Que vão te ajudar a não entregar os pontos qnd as fases mais difíceis passar
💚Vamos manter viva a esperança de que ficaremos bem!! Fale coisas boas a seu próprio respeito 💚
How Autoimmune Disease Develops
In today’s Whiteboard Wednesday, we’re looking at some of these mechanisms that have been discovered to cause autoimmune disease, whether you have Hashimoto’s, Lupus, MS, Rheumatoid Arthritis, Myasthenia Gravis, etc. It made sense to me to go over this, because a lot of people are still under the belief that they can just take meds and that’s it. Reversing and healing an autoimmune disease isn’t possible. _ In this clip, I talk about how toxins (e.g. heavy metals) can induce antibodies against your own tissue. These explanations can get complicated, but essentially you’re making a new foreign compound that looks like an invader. But as antibodies flag it, they also misidentify your own tissue as an invader too because that new compound looks like self-proteins. _ If you swipe you can see another clip of where I talk about how pathogens are also able to create a huge impact in autoimmunity. In my experience, 95% of people have an infection and we’re not paying enough attention to this. P. gingivalis is capable of doing some nasty things in Rheumatoid Arthritis as you can see. If you’re wondering why your RA isn’t going away no matter what you do, this may be missed factor. _ The bottom line here is that it’s our environment - mold, viruses, bacteria, protozoa, fungus, metals, toxicants… added with stress and probably more things, that are filing up your stress bucket. And when it overflows there is a los of oral tolerance. Meaning, the immune system inappropriately responds to things that it should have developed tolerance too. If there’s too many antigens (all of what I just mentioned above in your bucket) that set up inflammatory signals, the “breaks” of the immune system - your T-reg cells - don’t kick in. _ Yes, even your childhood matters here too and can increase risk of autoimmunity. Were you born C-section or did you have a vaginal birth? Were you in a super hygienic household or not? Did you live in an urban area or farm? Those things matter too- they help train immunity. _ If you have been skeptical and thinking you’re doomed, hopefully that ends tonight. You got here for a reason and it didn’t happen overnight.
Cant wait to receive my #cannaleafpen. It contains #CBD and as a woman with Chronic Pain and Fatigue due to #Lupus#COPD/Emphysema #MVP amongst others I am hopeful that it will work. I will be keeping you all updated when I receive it and how I feel as the days go. Everyone be blessed. @cannaleaf.pens
Do you see your challenges as opportunities? 🙋🏻♀️🙏🏼 These are 2 of the 4 different heart rate monitors I had to wear over 2 months straight less than two years ago. Talk about embarrassing driving around in a electric wheelchair (when I did have enough energy to leave the house) and these guys hanging off me LOL 😝
These health challenges and diagnoses turned into opportunities to take what I learned and what I went through and change everyones lives for the better by sharing my story daily. (Which may look like I got this all together but guys it scares the shit out of me every time I share!!). Now ask yourself-do your challenges get the best of you and do you notice that your not being open to the lessons you could learn by what is happening?? Next time when something challenges you, take a minute to reflect to see what lesson is underlying. I am living proof it will change your life forever and it will never be the same way. Life happens FOR us not TO us. 🥰
March is Child Life month! A big thank you to all the Child Life Specialists out there for all the work you do to help children and teens each and every day when they are hospitalized.
Fun fact: I am actually going on to college to study and become a Child Life Specialist! I can’t wait for the day I get to enter into a field in healthcare that I feel so compassionate about! - Caroline
I’m either seriously stuck or I’m about to have an incredible adventure thinking ‘outside the box’. 😬😂 Sometimes my body shows me that I can’t keep doing things the same way I used to, and I feel so much resistance to that message!
Whether it’s trying to set my mind to work on a project, edit videos, climb the stairs somewhere, fight a flare, or build a box fort with the monkeys- the jolt of disconnect upsets me. I know I am still in this fresh place where my first instinct is to personalize my level of ability, but it’s hard not to feel like a task is a challenge instead of simply a measure of accessibility. I tend to hover around the perimeter and look for the way in, wearing my exclusion on my sleeve. That snowballs into frustration and before I know it I’m comparing myself to the person I used to be; traveling into a fictional and poetic future for a bit.
After a minute I remember that “I am not able” is not fact, but at best a reaction to circumstance. Switch any of the variables around; add or remove elements and a positive strategy, and it disappears into thin air.
That’s the moment I remember that I am limitless. We all are.
So I pan out, again and again until I see more, and the big picture shows me a different story.
One where things change.
One where systems are responsive to touch.
One where the approach is flexible, definitions are dynamic, the process iterative, and inclusion joyfully reflexive.
One where help is abundant, and ‘what if’ and ‘why not’ are doctrines of love.
One where I am always my own solution.
So today I feel a little stuck, but instead of fighting it, I welcome it.
I sit with my stillness.
I acknowledge and accept that right now, this is my experience.
I touch the surface of my constructs gingerly and with wonderment.
I explore my thoughts.
And I savour this Before. ——————
Photo 1: @heathhorejda
Box: property of Kid Vader [Photo 1 is of a large cardboard box with Kat’s head poking over the edge. Photo 2 is a selfie of Kat wearing a blue shirt inside the box.]
Stuck to a mile today because I took the little seester with me on my run. She walked. I ran. It worked out. —
Today’s run was tough at first (my knees felt soooo stiff) but we eased into it with a light jog building up to a steady run. I ALSO DISCOVERED that if I listen to “Excuse Me” by @asaprocky on loop... I CAN RUN NONSTOP.
El Rocky is really coming through as I slowly start to “train” for this fall’s marathon. I put quotes around “train” because the real training kicks in two months from now. 🙈 I’m scurred...I’m excited... but I got @asaprocky headlining the running playlist so I’m going to be A-OK. Plus @liftingwithlexi’s got my back and she’s hella excited! 💪🏽😂 #day430#1000days